DEBRA logo

Charity

Dystrophic Epidermolysis Bullosa Research Association (DebRA)

Project

National EB Nurse

Region

National

Funding

$100,000

Funding Dates

2009

DebRA provides ongoing support and information for individuals, families, and professionals living and working with Epidermolysis Bullosa (EB) - a rare, genetic skin disorder.

DebRA is implementing a specialist nursing service for children born with EB that aims to develop and foster a more holistic approach to EB care across the country. The service will also provide specialist care and education programs for all those living with the condition.

For more information visit www.debra.org.au